Save the Date!
April 16, 2027
Regional Mini-Conference
Manhattan, NYC
More details to come!
Past Events:
2026 Conference
April 17-18, 2026; Syracuse, NY
Visit the event site at 2026 PWANY Conference to learn about previous speakers and sponsors, view pictures, review selected presenter slides and more!
Mini Conference and Activities
May 2-3, 2025; Albany, NY
Even when its a Mini-Conference, the opportunity to come together is always an incredible experience! It felt like PWANY managed to pack so much into a few short hours: family networking, hearing about newly approved treatments and ongoing clinical trials, learning from specialists in their fields, and growing vision for advocacy. I am so grateful for the families and presenters that attended, our strong collaboration with PWSAUSA, and our amazing sponsors (Aardvark, Acadia, Harmony, Soleno, and Danielle Angiolillo). I also need to give a shout-out to PWANY's event planning committee, who is using the momentum from the Mini-Conference to start planning for a bigger event in the spring of 2026!









