Prader-Willi Alliance of New York, Inc.

New York State Resources

Acronyms of  State Resources

OMRDD  (office of Mental Retardation and Development Disability)
This agency is the primary source of services and information for the care of the disabled. It's responsibility for providing services usually begins at age twenty-one. Recently they have coordinated some services for people with PWS as early as infancy. There is a PWS Coordinator responsible for the coordination of services to people with PWS whose telephone # is 518 473 6255.

Within OMRDD there is the Division of Quality Assurance whose responsibility it is to see that all programs provided by OMRDD meet the highest standards of quality.

OMRDD Links of Interest

MHA (Mental Health Association of New York State)
This site provides information on legislature, news, advocacy, outreach, and prevention. There are also links to state MHA affiliates and other online resources. Their Information Center provides free fact sheets on many mental health issues. The National Consumer Supporter Technical Assistance Center provides assistance to mental health consumer supporter organizations across the country.

DDPC (Developmental Disabilities Planning Council)
This agency is a primary source of grant money for projects directly or indirectly affecting the health and welfare of people with disabilities

DDSO (Developmental Disabilities Service Offices)
There are fifteen DDSO's throughout NYS each of them resposible for the services provided to the disabled within their geographic area of responsibility. Each DDSO has a PWS Coordinator who can assist you in your search for services.

VESID (Vocational and Educational Services for Individuals with Disabilities)
VESID's resposibility is to promote educational equity and excellence for students with disabilities while ensuring that they receive the rights and protection to which they are entitled; assure appropriate continuity between the child and adult services systems; and provide the highest quality vocational rehabilitation and independent living services to all eligible persons as quickly as those services are required to enable them to work and live independent, self-directed lives.

VESID Links of Interest

New York State Education Department

New York State Department of Health

Best Buddies of New York

Project Link for Kids

 

 

edited: 05/28/2009

PO BOX 222; Baldwinsville, NY 13027 * Phone:  (716) 276-2211 *  (800) 442-1655 * 


New York State Chapter of