This bill will ease access to needed supports for those with Prader-Willi syndrome.  Previously, eligibility for supports through the Office of Persons with Developmental Disabilities (OPWDD) was based on several criteria, with an IQ in the range previously termed “mentally retarded” and limited adaptive (self-help, community living, communication) skills being the foremost considerations.  While it certainly makes sense that these individuals with significantly impaired functioning will need life-long access to respite, medical, employment and housing options, families with Prader-Willi found themselves in an incredibly tenuous situation. 

This bill acknowledges the reality of Prader-Willi:  that there will be severely impaired functioning regardless of an achieved score on an IQ test.  The new legislation makes the diagnosis of PWS the primary consideration in determining eligibility, rather than a test score.

The Prader-Willi Alliance of New York is proud of what we have accomplished to ensure that future generations will have access to needed supports and services!