Registration for the 2026 Conference is open!

April 17-18, 2026
DoubleTree by Hilton (6301 State Route 298; Syracuse, NY 13057)

Learn about our speakers, activity rooms, networking opportunities, local resources and more by visiting our event site at 2026 PWANY Conference.

Or simply register at 2026 Conference Registration!

Past Events:

Mini Conference and Activities

May 2-3, 2025

Hyatt Place Albany (82 Montgomery Street; Albany, NY)

 

Even when its a Mini-Conference, the opportunity to come together is always an incredible experience! It felt like PWANY managed to pack so much into a few short hours: family networking, hearing about newly approved treatments and ongoing clinical trials, learning from specialists in their fields, and growing vision for advocacy. I am so grateful for the families and presenters that attended, our strong collaboration with PWSAUSA, and our amazing sponsors (Aardvark, Acadia, Harmony, Soleno, and Danielle Angiolillo). I also need to give a shout-out to PWANY's event planning committee, who is using the momentum from the Mini-Conference to start planning for a bigger event in the spring of 2026!