Virtual Membership Meeting

Tuesday, September 30, 2025 at 7:30 pm

Join us to hear about initiatives in progress as we look toward 2026. The Board of Directors is actively seeking feedback from our membership to ensure that we are targeting issues of concern to those with PWS statewide. A link for a Google Meet will be sent out to our current email list in the days prior to the Membership Meeting; however, if you have concerns that your contact information is not up to date, please fill out the relevant form at Family Information or Professional Information... Or you could email us at alliance@prader-willi.org.

Save the Date!

Please mark your calendars for the Prader-Willi Alliance of New York 2026 conference!
 

April 17-18, 2026
DoubleTree by Hilton (6301 State Route 298; Syracuse, NY 13057)

Our room block is already available. Make your reservation at DoubleTree PWANY Room Block

Our slate of amazing presenters and activities is coming together... more to come!

Past Events:

Mini Conference and Activities

May 2-3, 2025

Hyatt Place Albany (82 Montgomery Street; Albany, NY)

 

Even when its a Mini-Conference, the opportunity to come together is always an incredible experience! It felt like PWANY managed to pack so much into a few short hours: family networking, hearing about newly approved treatments and ongoing clinical trials, learning from specialists in their fields, and growing vision for advocacy. I am so grateful for the families and presenters that attended, our strong collaboration with PWSAUSA, and our amazing sponsors (Aardvark, Acadia, Harmony, Soleno, and Danielle Angiolillo). I also need to give a shout-out to PWANY's event planning committee, who is using the momentum from the Mini-Conference to start planning for a bigger event in the spring of 2026!