Registration for the 2026 Conference is open!
April 17-18, 2026
DoubleTree by Hilton (6301 State Route 298; Syracuse, NY 13057)
Our slate of amazing presenters and activities is coming together... stay up to date on all things conference by visiting the event site at 2026 PWANY Conference
Register at 2026 Conference Registration
Make your room reservation at DoubleTree PWANY Room Block. Reservations must be made by March 25, 2026 to guarantee that you will receive the group rate.
Past Events:
Mini Conference and Activities
May 2-3, 2025
Hyatt Place Albany (82 Montgomery Street; Albany, NY)
Even when its a Mini-Conference, the opportunity to come together is always an incredible experience! It felt like PWANY managed to pack so much into a few short hours: family networking, hearing about newly approved treatments and ongoing clinical trials, learning from specialists in their fields, and growing vision for advocacy. I am so grateful for the families and presenters that attended, our strong collaboration with PWSAUSA, and our amazing sponsors (Aardvark, Acadia, Harmony, Soleno, and Danielle Angiolillo). I also need to give a shout-out to PWANY's event planning committee, who is using the momentum from the Mini-Conference to start planning for a bigger event in the spring of 2026!









