Registration for the 2026 Conference is open!

April 17-18, 2026
DoubleTree by Hilton (6301 State Route 298; Syracuse, NY 13057)

Our slate of amazing presenters and activities is coming together... stay up to date on all things conference by visiting the event site at 2026 PWANY Conference

Register at 2026 Conference Registration

Make your room reservation at DoubleTree PWANY Room Block

There is still time to enter the drawing for one of FIVE event packages! Win either registration for one attendee for the PWANY conference and a night at the hotel in April 2026 OR registration for the PWS Moms' Hiking Weekend in Old Forge in June 2026. All you need to do is update your loved one's information at https://prader-willi.org/update_information before January 1, 2026! Winners will be notified during the first week of January. If a winner has already registered for their chosen event, reimbursement will be made at the event itself.

Past Events:

Mini Conference and Activities

May 2-3, 2025

Hyatt Place Albany (82 Montgomery Street; Albany, NY)

 

Even when its a Mini-Conference, the opportunity to come together is always an incredible experience! It felt like PWANY managed to pack so much into a few short hours: family networking, hearing about newly approved treatments and ongoing clinical trials, learning from specialists in their fields, and growing vision for advocacy. I am so grateful for the families and presenters that attended, our strong collaboration with PWSAUSA, and our amazing sponsors (Aardvark, Acadia, Harmony, Soleno, and Danielle Angiolillo). I also need to give a shout-out to PWANY's event planning committee, who is using the momentum from the Mini-Conference to start planning for a bigger event in the spring of 2026!