Everyone has headed home from the 2026 Conference, but you can still be involved!

Visit our site at 2026 PWANY Conference to share pictures, view presenter slides, learn about follow up events, and more!

April 17-18, 2026
DoubleTree by Hilton (6301 State Route 298; Syracuse, NY 13057)

Past Events:

Mini Conference and Activities

May 2-3, 2025

Hyatt Place Albany (82 Montgomery Street; Albany, NY)

 

Even when its a Mini-Conference, the opportunity to come together is always an incredible experience! It felt like PWANY managed to pack so much into a few short hours: family networking, hearing about newly approved treatments and ongoing clinical trials, learning from specialists in their fields, and growing vision for advocacy. I am so grateful for the families and presenters that attended, our strong collaboration with PWSAUSA, and our amazing sponsors (Aardvark, Acadia, Harmony, Soleno, and Danielle Angiolillo). I also need to give a shout-out to PWANY's event planning committee, who is using the momentum from the Mini-Conference to start planning for a bigger event in the spring of 2026!