Our Family Support Director, Nina Roberto, works with Catholic Charities Disabilities Services with their Family Support Services grant and chairs focus groups statewide. She assists Spanish speaking families to access services and provides education advocacy and crisis intervention for families and agencies. Nina is trained as a Special Education PWS Advocate through Prader-Willi Syndrome Association USA’s Wyatt Special Education Training Program. She provides in-service training to professionals, teachers, doctors, nurses, and residential/day service providers.
Helpful Links
OPWDD Health and Safety Alert: Support and Supervision of Individuals with Prader-Willi Syndrome : Issued by OPWDD December 2015
opwdd.ny.gov – Office for People with Developmental Disabilities
https://opwdd.ny.gov/get-started/front-door- How to apply for OPWDD services
Wrightslaw.com – Information on special education law
parenttoparentnys.org – Parent resources
nylpi.org – Special education/Disability advocacy
nylag.org -New York Legal Assistance Group
acces.nysed.gov/vr – Vocational resources
pwsausa.org -National Prader-Willi Syndrome Association, USA
https://www.health.ny.gov/professionals/patients/discharge_planning/pasrr_coordinators.htm – List of DDRO’s across NYS
includenyc- Resources for children with special needs
https://siddc.org -Staten Island Developmental Disabilities Council Locality of services and supports in borough of Staten Island
https://brooklynddcouncil.org/ – Brooklyn Developmental Disabilities Council Locality of services and supports in borough of Brooklyn
https://www.bronxddcouncil.org -BronxDevelopmental Disabilities Council Locality of services and supports in borough of the Bronx
Qcddny.org- Queens Council for Developmental Disabilities: Locality of services and supports in borough of Queens
manhattanddcouncil.org- Manhattan Developmental Disabilities Council Locality of services and supports in borough of Manhattan
http://medicaidwaiver.org/state/new_york.html -Medicaid Waiver Program
